July 14, 2013
Today was Day -2, which was the last day of Cytoxan for Bryan. Yay! This morning, prior to his Cytoxan dose he felt so good. He woke up and did his leg and arm exercises. He got a shower and still had a little energy left. I left to go back to the apartment to get some rest while Pam stayed at the hospital with Bryan.
When I returned, he was feeling pretty puny. He had to take more Compazine, after the Cytoxan. It was about the same time that he started feeling bad yesterday. This time, the sleepy feeling from the Compazine did not seem to leave him the rest of the day. He is still very sleepy with no appetite tonight.
Bryan and I often reflect on things in our life that have gotten us to the point we are at today. We remember being frustrated when we had to switch insurance companies last summer. His treatment schedule was messed up and we had to switch infusion companies. We thought that it was a disaster at the time and a headache. But guess what? We got through it and his treatments were back on track and things finally smoothed out. Then, we found out that because the school that I work at had less than 100 employees as of July 1, 2012 his Medicare was now primary. This also sent his healthcare into a tailspin as his Medicare and now Medical Mutual seemed to be fighting with themselves on who was primary. Therefore none of his bills were being paid. But guess what? That is all over with (except for one bill with OSU) and we survived and nothing bad happened. I guess what I am trying to say is that when you think that things aren't going in your favor and you can't think of anything else that can go wrong and then it does- don't lose faith. We are now sure that without the previous chain of events that I described this stem cell transplant may not have happened so smoothly. Medicare has been paying for 80% of this treatment now for a few years. Because now Bryan's primary insurance is Medicare we knew that 80% would be covered. If Medical Mutual would have been primary, we are sure that there would have been a fight. However, because they were only responsible for the 20% they didn't blink an eye. I am sure that in the long run this transplant will save both insurance companies a lot of money. It just goes back to perspective. You know, we could have easily thrown in the towel with all of the insurance battles or even when our basement flooded. However, there is a reason that we are put through these trials. We may not always know why, but trust that in the end there is good.
But don't just take my word for it. These are taken from The Bible NIV translation
Romans 8:28 And we know that in all things God works for the good of those who love him, who have been called according to his purpose.
Jeremiah 29:11 For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future.
I hope that these verses will give you hope and peace tonight. God bless you all!