Saturday, July 13, 2013

South Valley Kids and Day -3

Today was Day -3.  More of the same treatments, which included more Cytoxan and more ATG.  Bryan is hanging tough, but today was more of a challenge for him.  Staying positive was harder today as his emotions are running wild.  It may be a result of the high doses of steroids that he is on, or it may just be a normal process to go through.  Pam, Bryan and I all had a good cry as we read the notes and cards from Taylor and Torin today.  It made us so proud of how resilient and strong our two young girls are.  They must be going through many emotions themselves, but they are so positive about it all that I am absolutely in awe of them.  Bryan had a little bought with nausea today, but the nurse was able to give him a drug called Compazine.  The nurse called it his "sleep serum" because although the medicine is for nausea he was out cold.  I think that Pam and I may request Compazine for Bryan any time he gets a little crabby.  :)  All kidding aside, it is wonderful that there are medicines out there to help patients going through chemo minimize the nasty side effects.

I met a gentleman in the elevator today.  What a coincidence that he was also the Director of the Robert E. Lurie Cancer Center; the unit Bryan is on. 

Steven T. Rosen, MD, FACP

This man spoke very highly of Bryan's doctor, Dr. Burt.  He said that Dr. Burt has worked miracles with the autoimmune patients.   It was great to meet this inspiring gentleman today.  In addition, we had more good news.  Bryan's nurse today, Kristin, told us that Northwestern is about to be accredited as the 6th best hospital in the nation.  We are so very blessed to be a part of history in the making. 

On a different note, Torin's 4H Group, South Valley Kids, worked hard on their booth for the Perry County Fair today.  Their booth is designed around spreading awareness for CIDP in our community.  They have all done a lot of research and should be commended for being selfless when designing their theme for this year's booth.  They will be handing out awareness bracelets that Bryan and I had made as well as little blue ribbons that the group made.  Their leaders, Tuesday Dennis, Sierra Justice and Lisa Justice have been wonderful.  Thanks to all of these dedicated young people who are already learning the lesson of putting others needs above their own.  Good luck to all of you with your projects during this upcoming week. 

Here is the group who worked on the booth today.  Torin, our youngest daughter, is the one in the front who is sticking out her chin and is missing a top tooth.  I think it is safe to say that she is pretty proud of this project.    

                                            Here they are showing their bracelets in support of Bryan and CIDP.                                          Let's spread awareness for CIDP and Stem Cell Treatments!

     The members and adults wearing their bracelets to support Bryan and spread awareness for CIDP.                                                                                                                                  

1 comment:

  1. Congratulations to the South Valley Kids 4H.
    Thank you also for taking this opportunity to bring awareness and education about CIDP. Have fun at the fair!